A while back there was a social media campaign against the word "retard". Brave participants of the campaign monitored live feed on Facebook and Twitter, and whenever someone used the r-word, they contacted them and politely communicated their disapproval. While I applaud everybody who was gutsy enough to participate and thus stand up against this disparaging slur, I was not convinced of the efficacy of the campaign. Not because it takes a great deal of maturity and humility to admit one's fault and most people tend to become defensive or confrontational when challenged, but because the campaign targeted a symptom rather than the cause. Far be it from me to criticize this noble initiative, I'm sure there are some open minded people who as a result of the campaign will be more careful not to use the r-word in the future, but those who are sensitive enough to listen to a stranger's plead-tweet and consequently change their behaviors are not the ones who pose a real threat to the rights and dignity of disabled individuals. I believe if we really want to effect change, we need to target the thinking and the attitude behind the behavior and advocate for acceptance, tolerance, love and kindness.
We live in a society where individualism and self-reliance are core values while there is much less emphasis on community, group interest or interconnectedness. A society where aggression, clever manipulation and harshness are considered strengths while kindness, selflessness and self-sacrificial love are regarded as weaknesses. It's a society where an "empowered woman" proudly proclaims to be a "mean bitch" and instead of the old-fashioned virtues of grace, class or self-effacement, displays an exaggerated sense of self-importance and entitlement. Even advertisements target this pervasive sense of entitlement, explicitly suggesting that you should pamper yourself and buy a certain product because "you deserve it". The immense credit card debt that many people are slowly drowning in is a testament to a culture of indulgence and instant gratification. It's a culture where the pursuit of happiness is taken seriously: it's an inalienable right, included in the Declaration of Independence. By many people, happiness (a very vague notion in my opinion) is viewed as the ultimate purpose or the very meaning of one's existence, rather then a simple "side effect " resulting from living a meaningful life. We live in a society where individual achievement is celebrated but the value of being a faithful part of a system is overlooked. It's a society where violence, beauty and youth are glorified and if you become weak and vulnerable, or if you lack beauty or grow old, you will lose your worth.
It's a hostile environment for the more vulnerable members of our society, not a safe place for people with differences or disabilities, but, in society that lacks altruism and kindness, it's not just the disabled who are at risk. In her book, The Sociopath Next Door, clinical psychologist Martha Stout discusses the etymology of sociopathy. Sociopathic individuals don't have a conscience; that is, they don't have an internal bounding force, a sense of obligation rooted in emotional attachment as they don't feel love or affection for other human beings. Twin studies indicate that sociopathy is at least 50 percent genetic: it's a neurodevelopmental deviation which makes (as evidenced by brain imaging) processing more complex emotions in the cerebral cortex a challenge. Based on the measured blood-flow in the brain, interpreting higher level emotions for a sociopath is like working out a moderately challenging intellectual problem. They experience the more primitive, "limbic" emotions, like anger, fear or pleasure, but they are completely void of love, compassion or empathy.
Interestingly, researchers haven't been able to pinpoint the nurture part of the sociopathy equation, the environmental circumstances that shape the genetically predisposed individual into a full-fledged sociopath. No child rearing practice or parenting failure or any other component in the individual's immediate environment can be linked to sociopathy; therefore, researchers suspect that the missing link might lie in the individual's broader environment, namely his or her culture. Statistics show that in eastern cultures, such as Japan and China, the number of sociopathic individuals is significantly lower than in western cultures. Dr. Stout theorizes that in eastern cultures where interconnectedness and respect for every form of life is a core societal value, individuals with a sociopathic deviation are forced to compensate cognitively for their emotional deficiency in order to blend in. In contrast, western cultures, where sociopathic traits are regarded as assets, provide an ideal environment for sociopathy to fully develop and flourish in genetically predisposed individuals. Alarmingly, there has also been a marked increase in the diagnoses of sociopathy since the last decade in the United States, which should motivate us to take a long critical look at the driving forces and dynamics in our society.
Anybody who is masochistic enough to read through the comments after disability-related articles is keenly aware that a frighteningly large number of our fellow humans consider people living with disability a mere fiscal burden on society. There is an apparent tendency to assign value to people based on their profitability or their financial contribution to society. I find it rather ironic, or flat-out hypocritical, that there is so much disapproval and railing against "wasting" our scarce resources on accommodations and services for people with disabilities who allegedly don't contribute to society but there is little protest against the outrageous amount of money paid out to basketball players, movie stars and unscrupulous CEO's, whose societal contributions are questionable. I wonder how someone can find it completely acceptable that a person is paid millions of dollars for being able to skillfully throw a ball, yet suggest that it would be better to euthanize people with severe disability so taxpayers wouldn't be burdened by the 8-dollar hourly wage of the caregiver providing In-home supportive services.
Some people argue that this indifferent or downright hostile attitude towards disability is a natural human instinct that stems from our predatory self and the survivalism which is the moving force behind evolution. However, while "selfish survivalism" serves the interest of the individual on the short run, selfless altruism ensures the continued existence of a group. This tendency to put group interest first, to the extent of risking individual safety, is not an exclusive characteristic of humans and it has been observed in species such as primates, deer, and crows. As for predatory tendencies, psychological research shows that conscience-bound, normal human beings are not natural predators; in fact, people need to be specifically conditioned to be able to kill in battle, and taking lives results in long-lasting psychological effects such as PTSD, severe depression and even suicide. Therefore, we are not natural-born killers and while we do have a strong instinctive tendency towards survival, our inclination to be altruistic is also encoded in us . Is it possible then that it's a matter of choice?
19 comments:
Wow. This is worthy of an op-ed. You should send it out. And I'm going to post it on my blog tomorrow morning with a link --
well, sports and movies are entertainment, which links to lots of money, advertisement, brainwash, it's what our precious country is about. I can't believe how well you can cover such a broad area so excellently with such a few lines of thoughts. Laci
That's impressive writing - with Izzy in tow. Wish I could write like that ( even in a quiet room with lots of time!!)
Found this whole topic very intriguing but quite disturbing.
I think 1-finger phone typing with a restless child is a hugely underestimated skill in society and should be more widely recognised :)
Quite simply, the stress placed on individualism rather than cooperation means we can be sold more stuff - it is the root of capitalism.
If we pooled our resources - cars, washing machines, CDs, DVDs, toasters etc, we could all have exactly the same benefits at a fraction of the cost to us as individuals, and create a lot less polution and waste.
But we wouldn't buy as many.
So anything that whiffs of socialism has to be stamped out and ridiculed immediately.
And given that we live in a culture that venerates sociopathic values, then the most sociopathic rise to positions of power, authority and ability to manipulate society.
Land of the Free actually means Land of the Manipulated to Buy More Stuff and Make the Weathiest Even Wealthier.
Absolutely insightful analysis of the darker side of world in which we find ourselves...but, yes there are choices. I also am reading the same and wonder if there is a way a person without conscience can ever develop one...or are they the doomed without hope?
so, all i could keep thinking of while i was reading this was that you were typing this with one finger while holding izzy. maybe i might have missed the point of what you were saying, not sure. but you can explain it to me in a couple of days! i can't wait! ;-)
Eloquently written. I am re-reading 'Becoming Human' by Jean Vanier. He makes many of the same points, and helps me stay strong in my belief in the value of kindness. It's a scary world out there.
Elizabeth - Thank you! It's an honor to be on your blog :)
Laci - Our money goes where our values are. People can say whatever they want, but their spending shows their priorities.
Marcelle- Thank you :) Have you ever watched Friends? Do you remember the episode when Joey was reading the Shining and it made him so scared that he put it in the freezer? I thought about putting the Sociopath next door in the freezer at one point :)
Kim - Having grown up in Europe where most countries tend towards social democracy, I find it very intriguing that here in these United States lots and lots of people identify socialism with Soviet communism and regard it as a curse word.
Phil - Yay for you getting the book :) Isn't it well written? I was wondering about the same, whether someone can develop a conscience. I imagine there is a "sensitive period", like with speech development and attachment. If kids are not exposed to language (even to sign language) before a certain age, they will lose the capacity to acquire a language. Same with attachment, if babies don't have a caregiver who shows them affection, they will develop attachment disorder, intellectual disability or if they are not touched at all they can even die. Maybe it's the same with our conscience and if genetically predisposed individuals don't get the correct moral guidance or learn the cognitive skills to compensate for their deficiency, they will end up conscienceless. It is such a difficult topic though, because it has all kinds of moral, ethical and theological implications.
Jenn - I can do all kinds of impressive things simultaneously, while holding or venting Izzy. Which you won't see, because YOU will be holding Izzy while I'm typing. Bwahahaa :)
Carolyn - Thank you! I've never read 'Becoming Human'. I'll have to check it out.
One finger on a phone, huh? This is generational ;-) I could never do that even without a squirming child.
Even the iPad keyboard that I'm trying to help Amelia access is a challenge for me, the only upside being it helps me understand what a motoric challenge it is for her.
I think all of us in the the special needs community (and I hate that phrase, but lack the creative energy to replace it with something I'd like to hear instead, something fresh--we really do need some new language, folks, don't you think?) know that social Darwinism is wildly unsupportive of us as parents and positively dangerous to our kids. I have no problem with the pursuit of happiness per se (even though it's tricky---apparently the Bhutan happiness quotient is being skewed in the wrong direction by all those happiness-seeking, despoiling
tourists) and I would love to feel happier in my life, and for Amelia's life to be happier, and your and Izzy's lives to be happier. Love for us all to be in the Don't Worry, Be Happy state. I think good can arise from happiness, just as happiness can come from goodness. Judging by the consumption level of anti-anxiety and anti-depressant meds and bonobo-like reliance on sex (not disparaging drugs, sex or monkeys, here) pursuit has become kind of contextually isolated and confused. I wonder, Erika, what your sense is of how the US compares with the way things feel where you grew up, where cultural roots go centuries deeper?
@Kim: I'm not sure it would be workable to pool my washing machine, our laundry is so relentless, but the idea does conjure a very pleasant image of
conviviality; women (it's always women, isn't it?) scrubbing together down by the river...
When I think of Amelia's future, the only safety I can imagine for her is bounded by something communal--tribal, really. In many ways human consciousness has not caught up with globalism. People do not see themselves as rapacious ants. I don't think Andy Warhol had quite that framework in mind when he made his prescient remark about everyone's 15 minutes of fame, but I wonder if the unfettered rise of sociopathic behavior has something to do with sheer numbers...
Andrea- i love your comments, they are glimpses into your hard-earned wisdom that you accumulated over the years. I think the 'pursuit of happiness' can get tricky when happiness is viewed as a tangible goal that you need to attain by doing something or getting somewhere, as opposed to being a state of mind that "occurs" while living your life. Some people can have it all, riches, success, health, family, all the privileges in the world and still feel like they haven't achieved that ultimate happiness, while others possess a contentment despite of their hard circumstances. In Hungary, I think there is considerably less talk about happiness as a life goal. Your goal is to get accepted to university, buy a house, get a good job, get married and have a family, or whatever, and happiness is a "side effect" that happens while you are fulfilling your purpose n life. There is also less talk about nurturing self-esteem and this sentiment that "you can do anything you want and become anybody you want" is completely absent. We grew up with the original (sadder) version of classic tales, not the Disney version. Also, I don't think happiness is viewed as a right that you are entitled to. My grandparents lived through both world wars, the Nazi invasion, the Russian army, the Stalin era, the Rakossy dictatorship when their land was taken away, Communism, the '56 revolution and the ensuing retribution etc, etc, and it gives me a very different perspective on life, its hardships, happiness and our "right" to it. I'm not saying my perspective or my upbringing is better, of course, but it is certainly different. And I often think about this "tribal" or "communal" living and how different it would be to raise a child with disability under such circumstances. I think living in a tight community would cut down on the high depression and anxiety rates that plague societies where people are isolated and alienated. So, anybody wants to start a Special Needs commune? :)
A completely brilliant post. Happy to have found it through Elizabeth Aquino's blog.
Re Disney, a small, perhaps ironic anecdote: Some of my family grew up in Kansas City, and a great uncle of mine used to recall seeing Walt Disney as a young boy in the snowy winter, limping from polio, selling newspapers. An image as iconic as the little match girl. Different outcome, of course.
Denise - Thank you! And thank you for visiting.
Andrea - Wow. Now that story makes me look at the Walt Disney phenomenon very differently.
Wow. I'm putting a link to this on my blog. Thank you!
The sheer and tremendous effort to complete this post as stated in the title near-overwhelms me. But it also explains "child raring practice". And possibly the unknown-to-me "cervical cortex". *complete aside* I've heard of men have 2 'heads' but not of a similar cognitive connection to female parts. On the other meaning of 'cervical' I'm quite sure there is not cortex about the neck. Just saying.
Oh, I feel a spate of jealousy that Jenn is coming for a visit!
On the real topic of the post, I'm also distracted by the comments. You are quite accurate, Erika, in your depiction of American understanding of words - in your reply to Kim. Albeit, I thought I understood his comment at first reading.
In other discussions I have witnessed I have thought there was too much emphasis on 'happiness' over 'pursuit'. The 'right' is to pursue - and the 17th Century use of the word 'happiness' was not entirely commercial but indeed commerce was severely restricted by King. "Pursue" is what your grandparents did, Erika, I think.
Disney was a creative genius and not so much driven by money as by giving joy. As I understand him.
This post seems to place you in the 'half-empty' group, Erika. Correct? Might I suggest some different reading material - the Harry Potter series, perhaps? Voldemort is an absolute sociopath and with each book the reader is given more information for analyzing his particular evil development.
Just restless, huh? No vomit?
Hope so.
Barbara
Chocolatesa - Thank you!
Barbara - I like your shift of emphasis from 'happiness' to pursuit.
Hm, I don't think I'm pessimistic, in fact, I do have hope in the fact that the vast majority of people are bound by conscience and we are hardwired to care about others. I don't think it is a futile attempt to try to create a more disability and difference friendly society, but instead of targeting the behavior, we need to address the traits and attitudes that motivate the behavior. We as a society should appreciate and reinforce qualities like kindness, acceptance, selflessness as opposed to manipulation and self-interest.
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"We as a society should appreciate and reinforce qualities like kindness, acceptance, selflessness as opposed to manipulation and self-interest."
I believe reinforcement for those 'qualities' is primarily provided through formal religious communities (churches) and to children via their parents. 'Society' seems to be eschewing formal worship and enabling poor parenting - although, being half-full, I don't think 'society' is winning. Barbara
I don't see religious communities and parents as separate, competing entities from society, rather I believe that they are units who make up (at least partially) society.
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