Hospital, seizures
Izzy started seizing again this morning so they doubled the dose of versed to put her in deeper sedation. Tonight the neurologist is going to look at the Bean's EEG and decide if he needs to yank up the dose to deepen the sedation, or even take it all the way to a coma.
On a positive note, Izzy's pneumonia is clearing up, the gook in her lungs is not as thick and yellow, and her fever broke.
Today I bought some long rainbow-colored striped socks for her, not just to keep her feet warm but also to counteract the deeply depersonalizing effect of becoming a stripped down, intubated patient.
Waiting, waiting, waiting.
19 comments:
Erika and Phil,
I have been reading about Izzy for over a year. I feel like I know her because of your amazing writing skills and I hate the thought of her having to go through all of this. You, Izzy and Phil are in our thoughts, I would love to talk with you. Words seem worthless sometimes but please know our hearts are with you at this time.
Kim (and Rich) Clay
I don't comment too often, but I do read. I am sending love and light to you and your family. xo from NE Ohio
Oh sweetie -- sweetie being you Erika and Izzy.
Good for you for putting on those striped socks!
I'm so sad that you are going through this. Praying for respite for you and the whole family. xo
The socks are excellent!
I'm thinking of Izzy as having a bit of a rest right now but unfortunately her parents are not at all resting. Neither are we, your many caring cyber-friends. Love.
Barbara
Love the socks (and knee-highs).
We're all with you and just wish we could be in southern CA with you to bring you some better coffee than what the hospital cafeteria has.
Edes, draga, gyonyoru, tunderi Izzy baba. Hihetetlen hogy mennyi ero van ebben a torekeny testben. Minden nap olvasom a blogodat, es remenykedek benne, hogy jo hirre talalok. Bizom benne, hogy a koma elkerulheto lesz es Izzy rendbejon ebbol az iszonyatos seizure allapotbol. Imadkozom ertetek hogy legyen erotok, kitartasotok ezekben az idokben. El sem tudom kepzelni, hogy mennyire nehez lehet most. Legyetek erosek.
Eniko
I'll be there soon with better coffee, some bitter jokes and lots of love. I am so sorry to see Izzy like this and to know what you're going through --
Many of us are out here waiting with you, wishing a cyber sandwich or hug
were as useful as a real one...
Love you guys and wish I could help.
I feel for you all so much. It's just not fair that you have to go through all this.
Marcelle
I love the socks, Izzy looks pretty in them, you both are amazing, Erika!
I'm afraid I could only bring you a good English tea swimming across the ocean, but I want you to know that there are prayers for Izzy on this side of the world as well.
I will keep praying. All the time.
Big hug and sending love,
Krisztina
Sending you the all healing energies which we can muster for a rapid and peaceful resolution of these horrid seizures....our warmest regards and blessings.
Thinking of you. Sending love.
The socks are superb! :)
((hugs))
Édes Erika és Phil, I'm really glad it's you going through this and not me, because you're setting an example for all the world to see far better than I could be. God knows. He sees and he hears. Be strong and courageous--you honor Christ, brad
Love the socks! Praying hard for Izzy and you.
So sorry to hear about the increased seizures, and the socks really look cute. Thank you for the update and hang in there. You are doing a great job of taking care of precious Izzy.
i'm so sorry! i have no electricity at home because of hurricane iren, so haven't been able to keep up. i'm right now visiting my grandmother at the nursing home, and they have internet. i'm praying for you guys! i love the socks! i wish i could be there and be some sort of help to you guys, even if it's just bringing you supplies at the hospital or something. i'm praying!
Having to go through such a difficult situation being so brave and decent, makes you a hero. You all are heroes. I'm praying for you and I do hope you become winners too.
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