Izzy was finally extubated in the morning and she is breathing on her own, even though she is still receiving oxygen for respiratory support. She could have been extubated yesterday, but she decided otherwise. Beanie thought she would rather just sleep through the day and not breath over the ventilator, except for a brief period of time when she got mad at an unsolicited diaper change and showed us who is boss. While Beanie was on la-la land, her neurologist came by and programmed her VNS device. Between the gastrostomy button in her tummy and the VNS gadget in her chest, I feel like we have a bionic baby.
The Bionic Bean is getting breathing treatments every two hours and she is still on several antibiotics and a host of different medications, just about enough to start a small drug dealership. She is off the heavy-duty sedatives, which is causing some withdrawal symptoms, but nothing Trainspotting-like. She still needs medication for the pain left behind by the breathing tube and the surgery, and she has some wheezing and stridor due to the swelling in her trachea. Her breathing sounded Darth Vaderesque this morning but by now it turned into more of a squeaky door sound.
Beanie is being her smiley, laid-back, friendly self although she keeps an eye on every medical professional who enters the room, making sure they are not up to something suspicious. The respiratory therapists usually get the stink-eye after they commit a suctioning against her, but she quickly forgives them.
She was happy to see me after the extubation, and I didn't get any attitude or smacking-around for what we have put her through. However, I was really afraid that she would just pop from excitement when she saw Daddy, the subject of her utmost adoration. It's okay, I'm really not jealous at all for being the third-wheel in their love affair. Besides, I got to hold her a bit in the afternoon, so there.

18 comments:
I am crying.
She's just outrageously strong and so are you, dear Erika.
What a precious photo!!!!!
I'm so glad to hear this positive news.
Keep us posted! xo
this is a great pic! i'm glad she's been extubated! keep on keeping on!
Good goin', folks!
Great news! Yay for one less tube! Love that photo, it's just precious.
Erika,
This picture just melts my heart!!! Soo precious!
Good news from the Bean, hope it will go on like this!! Happy for her and for you, too!
Lovin this and you all, continually in my prayers, Phil is just such a wonderful father, and even though we have never met, there is no woman I have greater respect for as a mother. Your determination with your Hummingbird helps me deal with the bad turretts days I have with my Philip. Thank you for being such a great mom!
That's a picture I'll remember forever.
Great to know about Izzy :)
Végre jó hírek! :) Mindenkivel nagyon egyetértek, aki szerint ez egy fantasztikusan-cukor-édes-és-emlékezetes kép Apáról és Lányáról!!!! :)
Ölellek és puszillak Titeket!
Orsi
What a tender picture!!! A picture a thousand of words!!!Wishing you always see your daughter smiling for the rest of your life.
Beautiful picture! I'm glad she's improving. ((()))
That is an award winning photo! The love and joy just radiate. I am glad that Izzy feels better, and hope for some good days ahead.
love it! thanks for sharing with us!
The three of you are an inspiration. Praying for you & missing you!
So happy to hear this! Izzy has the most amazing parents...I know you hear this all the time, but it's true! xoxo
Hey, we can't all be #1!
The love and joy in the photo -- too much. xo
De jooooo! Jo vegre valami pozitivat olvasni, annyira drukkoltam! Es ez a kep, hat ez tunderi. Egyem meg a kicsi szivet Izzy bogyonak, hihetetlen hogy mennyi elet van ebben a csoppnyi kis testben! Nagyon eros harcos az biztos. Es ti is, Erika. Minden elismeresem.
Eny
Chantel and Izzy share similar traits of never holding grudges and adoring the men in their life!
What a gorgeous, strong little girl. Those smiles are the best!
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