Saturday, November 12, 2011

Same old

It looks like 11/11/11 has passed too without an apocalypse and the world hasn't ended despite of the doomsday predictions and the neat little palindromic date on the calendar. Now if you have ever experienced an apocalypse on any scale, you know that worlds usually fall apart unexpectedly and unannounced.  Do you know what else hasn't ended? The flipping seizures. We took Izzy to the neurologist on Tuesday to have her VNS cranked up in frequency and also in current intensity but these suckers are stubborn and she is still seizing every 20 seconds. Her seizures are so relentless that they would make Mother Teresa kick a cow. When I expressed my concern about the freakish frequency of the seizures to the neurologist, he reassured us that there was still plenty of room for increase, we just have to go slowly so the nerve can get used to the stimulation. He also didn't share the sentiment that we are running out of options and he assured us that there are some new anti-epileptic drugs coming out in 1212 to which we can switch from the Keppra and the Vimpat. He also told us about a new procedure, another VNS-like device that is placed directly within the skull, underneath the scalp, where it detects abnormal electric activity in the brain and sends out electric signals to stop the seizures before they manifest themselves in any symptoms. It's absolutely amazing, fascinating and mind-boggling, unless it is your kid whose skull and brain we are talking about, in which case it's just simply mind-boggling. 
http://probablynotagoodsign.com/funny-caution-warning-signs/as-if-instant-death-isnt-punishment-enough/

4 comments:

Jenn said...

i'm glad the neurologist let you know that there are more options out there. but at the same time i get how scary and overwhelming that can be, too. i'm praying.

Elizabeth said...

I have a chapter in my book that will never be finished that's called "Brain Surgery" that discusses this very thing.

I'm sorry to hear of Izzy's seizures. I hate the damn things.

emma said...

Hey Erica, hoping things are going better today, was hoping something good would come out of the neuro visit...

I'm not sure this is so useful but I don't think you are out of options yet, a few discussions keep showing up on my FB page regarding AED's , and the variety and combinations are astounding (told you it might not be useful, it's not what one would normally consider encouraging).

I find biology in general fascinating, but it ends up having a entirely different flavour when it's your own child involved...

Selene said...

That sucks, and I'm just sorry. xo

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