As I have read many comment sections after many disability-related articles, I am fairly familiar with the recurring themes and arguments; therefore, while the prejudice-laden comments disturb me, they don’t surprise me anymore. I don’t get shocked at the openly hostile comments, nor am I astonished at the ones that fancy themselves compassionate and claim that if a parent truly loved his or her disabled child, then s/he would not “make” that poor little angel suffer, but rather let the poor little angel die. (These closet involuntary euthanasia advocates never elaborate on how exactly they would stop this nonstop suffering of our special little angles; hence, I don’t know if they suggest we put a pillow over the special little angels’ heads or just drop them off on the highway.)
This time around, however, I did stumble upon a comment that startled me, though not because it contained a new sentiment or idea that I hadn’t encountered before. While arguing against the transplantation, a commenter brought up the question of ‘personhood’ and Mary Anne Warren’s oft-quoted criteria for qualifying for it, namely sentience, emotionality, reason, capacity to communicate, self-awareness, and moral agency. Warren’s 5-point measure of personhood was constructed in support of her pro-abortionist argument that a fetus has fewer rights than a fully developed human. While the question of personhood has come up in debates before concerning profound disability (see growth-attenuation, involuntary euthanasia and infanticide) and Warren’s criteria have been cited by those who argued that profoundly disabled individuals should not have the same fundamental rights as other human beings, I was startled by the comment because of its context and the disability level of Amelia Rivera.
When I wrote this post and this post a couple years ago, and I named Peter Singer one of the most dangerous men on my dangerous-man-list (a close second to Gargamel), I did not expect to encounter his utilitarian ideas regurgitated among the misspelled, punctuationless comments at Huffpost, in connection to a young child whose disability is not profound. Bioethicist Peter Singer believes that parents of disabled infants should be able to kill their disabled child if it gives way to another, nondisabled, happier baby and thus increases the total happiness of the parents and all the parties involved. At the same time, he argues that various animals are rational, self-conscious beings and it is morally wrong for humans to put themselves above sentient animals. Singer regards the notion of the “sanctity of human life” as a vestige of the outdated Judeo-Christian tradition and calls it “speciesism. In other words, Singer contends that human beings who are incapable of self-awareness, remembering and reasoning, such as newborns, babies, Alzheimer and dementia patients, and people with profound intellectual disabilities are not persons, while sentient animals like dogs, cats, pigs and dolphins are.
But even Peter Singer, who believes that it is not intrinsically wrong to kill an infant and it is morally less condemnable to kill a dog than a disabled baby, believes that infanticide may be wrong if it has a negative affect on the parties involved and that it should be the parents who decides whether they want to kill their child. A third party making decisions that violates the so-called “nonperson’s” rights against the parent’s will directly contradicts Singer’s utilitarian philosophy, since it would clearly decrease the amount of the total happiness of the interested party. I also would like to quietly mention, that Peter Singer’s philosophy is not only flawed and contains inconsistencies (like the question remains why he would only restrict infanticide to severely disabled infants when he sees abortion and infanticide oncologically the same and he doesn’t restrict abortion to severally disabled fetuses), his actions are inconsistent with his own views when it comes to his mother who is suffering from Alzheimer’s Disease and according to Singer’s criteria, doesn’t qualify as a person.
If we believe that personhood is not inseparable from our humanity and we set up a list of criteria one needs to meet to qualify as a person, we end up on a dangerous slippery slope. As the Huffpost commenter demonstrates, the criteria originally created by Warren to prove that fetuses are entitled to fewer rights than their mothers can be expanded to limit the fundamental rights of profoundly disabled individuals and then further expanded to discriminate against higher functioning disabled children against their parents’ will.
Throughout history, people experienced unjust and unequal treatment due to their ethnicity, race, religious background, sex, age, and various other characteristics that the majority group arbitrarily considered inferior. Societies that considered themselves too cultured and too civilized to operate by the laws of the wild and the animal kingdom (where the strong rules and the weak is eaten) felt the moral need to philosophically justify the unequal or cruel treatment of an oppressed group.
This time around, however, I did stumble upon a comment that startled me, though not because it contained a new sentiment or idea that I hadn’t encountered before. While arguing against the transplantation, a commenter brought up the question of ‘personhood’ and Mary Anne Warren’s oft-quoted criteria for qualifying for it, namely sentience, emotionality, reason, capacity to communicate, self-awareness, and moral agency. Warren’s 5-point measure of personhood was constructed in support of her pro-abortionist argument that a fetus has fewer rights than a fully developed human. While the question of personhood has come up in debates before concerning profound disability (see growth-attenuation, involuntary euthanasia and infanticide) and Warren’s criteria have been cited by those who argued that profoundly disabled individuals should not have the same fundamental rights as other human beings, I was startled by the comment because of its context and the disability level of Amelia Rivera.
When I wrote this post and this post a couple years ago, and I named Peter Singer one of the most dangerous men on my dangerous-man-list (a close second to Gargamel), I did not expect to encounter his utilitarian ideas regurgitated among the misspelled, punctuationless comments at Huffpost, in connection to a young child whose disability is not profound. Bioethicist Peter Singer believes that parents of disabled infants should be able to kill their disabled child if it gives way to another, nondisabled, happier baby and thus increases the total happiness of the parents and all the parties involved. At the same time, he argues that various animals are rational, self-conscious beings and it is morally wrong for humans to put themselves above sentient animals. Singer regards the notion of the “sanctity of human life” as a vestige of the outdated Judeo-Christian tradition and calls it “speciesism. In other words, Singer contends that human beings who are incapable of self-awareness, remembering and reasoning, such as newborns, babies, Alzheimer and dementia patients, and people with profound intellectual disabilities are not persons, while sentient animals like dogs, cats, pigs and dolphins are.
But even Peter Singer, who believes that it is not intrinsically wrong to kill an infant and it is morally less condemnable to kill a dog than a disabled baby, believes that infanticide may be wrong if it has a negative affect on the parties involved and that it should be the parents who decides whether they want to kill their child. A third party making decisions that violates the so-called “nonperson’s” rights against the parent’s will directly contradicts Singer’s utilitarian philosophy, since it would clearly decrease the amount of the total happiness of the interested party. I also would like to quietly mention, that Peter Singer’s philosophy is not only flawed and contains inconsistencies (like the question remains why he would only restrict infanticide to severely disabled infants when he sees abortion and infanticide oncologically the same and he doesn’t restrict abortion to severally disabled fetuses), his actions are inconsistent with his own views when it comes to his mother who is suffering from Alzheimer’s Disease and according to Singer’s criteria, doesn’t qualify as a person.
If we believe that personhood is not inseparable from our humanity and we set up a list of criteria one needs to meet to qualify as a person, we end up on a dangerous slippery slope. As the Huffpost commenter demonstrates, the criteria originally created by Warren to prove that fetuses are entitled to fewer rights than their mothers can be expanded to limit the fundamental rights of profoundly disabled individuals and then further expanded to discriminate against higher functioning disabled children against their parents’ will.
Throughout history, people experienced unjust and unequal treatment due to their ethnicity, race, religious background, sex, age, and various other characteristics that the majority group arbitrarily considered inferior. Societies that considered themselves too cultured and too civilized to operate by the laws of the wild and the animal kingdom (where the strong rules and the weak is eaten) felt the moral need to philosophically justify the unequal or cruel treatment of an oppressed group.
For instance, Aristotle made an attempt to justify slavery by claiming that some people were born natural slaves because they lacked certain qualities, such as the ability to think properly, and thus needed someone to rule them and tell them what to do. Aristotle likened these “natural slaves” to domestic animals and he claimed they were only fit for physical labor. Southern philosophers argued that the transatlantic slave trade was morally acceptable since slavery was part of the natural world order and slaves were inferior beings who had no legal standing as a person. Social Darwinism was used as the intellectual justification for oppressing black people and women, who were regarded as biologically inferior.
If we believe that someone’s right to life and equal treatment depends on their intellectual ability, than how does our thinking differ from those who endorse slavery or oppress women or treat a people group unjustly because they consider them inferior? If we dismiss the sanctity of human life and deny that people have inherent value then what basis do we have to advocate for the kind, just and moral treatment of a human being, or sentient animal in that matter, if you are Peter Singer.
15 comments:
Ah yes, Peter Singer's mother...
Your ability to teach through words is exceptional, erika.
Accepting that personhood and life begins at conception destroys Singer's house of cards.
So very well written, Erika! I, too, would opt for a desolate space free from all sorts of evil. I am obsessed by the notion that anyone could advocate a position that is reminiscent of "old" thinking in that it betrays the lack of evolution of human conscience...in the 20's we sterilized the disabled so the "selfish" gene could not be passed on. You eloquently wrote about Action T-4 Today, some advocate a hierarchy of human beings based upon invented criteria. Shouldn't we be judged as a society by our commitment to the weakest, the most vulnerable? It was a brilliant post...thanks!
Beautifully written. Very thought provoking. Thanks.
I wonder when mankind will accept everyone for their inherent value. It seems like such a simple thing.
I like the new format, Erika, and I am glad you are back writing here.
Most of the furor about what happened at CHOP is about issues that are not at the crux of what could have happened there. IQ is not a factor in getting a transplant or being or your place on the transplant list, at least not directly and officially. If that doctor indeed said that the child, Amelia was not eligible for transplant there, because of the MR designation on her file, he was wrong in that this is not transplant or hospital policy. I am familiar, unfortunately, with CHOP and that has never been an issue. Other disabilities and situations that can adversely affect the outcome of a transplant, yes, are on the list of disqualifiers for transplant and that is officially universal.
What I see as a very big problem for the disabled, particularly those severely disabled is that they need someone, something, willing to take care of them, sometimes fully. If a family member refuses to take that responsibility, and if no one else steps up, there is someone who cannot care for him/herself. THose who don't have someone who will take that role, when they cannot do it themselves, are in a bad place, just as those who do have caretakers are at the mercy of the competency, sanity, ability and beliefs of the caretaker. How to address this issue to give all those helpless or unable, which include children, general is a difficult one to regulate.
I've seen families who draw their own lines as to how far they will go for a disabled child or family member. Some will give up their kidneys,lungs, pieces of liver, others will just not even pursue such options because it is too much for them. That has everything to do with the quality of life of any "unable" person. The reality is that if you have a parent who will push the envelope for survival during a medical crisis, you have a far higher chance of making it, then if you have one who is complacent,or doesn't address the issues.
I do not agree with Singer at all, to put it very mildly and succinctly, however, he does lay out the rationale and the beliefs of what is out there, and I am grateful that he does this so that these beliefs and ideas are something that can be fought rather than phantoms that we know are there,but have nothing to address; they just flit by leaving droppings and stench as they do.
A - Considering some of the ideas that Singer has put out there, I'm just glad to know that he actually has a mother. The fact that he is spending large funds on her care instead of giving that money to the poor as he advocates, is also a relief for me. It's good to know that he doesn't subscribe to his own views.
Barbara - Thank you so much, you are very kind :) Singer's views on abortion and infanticide are very inconsistent. While he argues that abortion and infanticide are oncologically identical, he thinks we should confine infanticide to severely disabled babies, but proposes no restriction on abortion.
Phil - Thank you for the kind words! I completely agree with you: if personhood can be separated from humanity, then anybody can come up with a set of criteria that is needed to be met in order to earn the designation "person". And people did come up with different criteria throughout the history - like you had to be a certain race, gender or ethnicity -which they justified by philosophical, intellectual, religious or biological reasoning. And why latch on the intellectual criteria then? Why not argue that conscience, and the capacity for attachment, affection, compassion, and empathy are also qualifying factors and people lacking these abilities, like sociopaths, cannot qualify as persons.
Pam - Thank you for your kind words.
Helena - I've been wondering why it is that some people gravitate towards humane and humanitarian ideas, while others don't have a problem with injustice. Is it experience or education, or family background, culture, genetics, or the combination of all? Even in times in history when slavery was the norm and widely accepted and black people weren't considered persons, there were those who - while members of the privileged class - questioned the accepted order of things and spoke up against injustice.
Cathrine - you bring up so many excellent points. I completely agree that medical factors need to be taken into consideration when deciding on a transplant candidate. I also agree that when it comes to intellectual disability or mental health, it is important to know whether the candidate has proper support to ensure post-op care, since the success of the transplant depends on that. What is so outrageous about the Rivera case is the fact that the transplant team gave no other reason besides "mental retardation", which is hardly a medical factor. (Not to mention that the parents were willing to donate and Amelia is only three which makes the guardian question moot). If we deny a transplant based on intellectual ability, then why not deny it based on sociopathy or criminal record? Can we deny a transplant from a child-rapist or a serial killer? Have you read William Peace's post yesterday? He posted a quote from Penny Richards who makes a link between growth attenuation and this transplant case. I thought it was brilliant.
Oh and thank you for noticing the new format, Catherine! Phil got a hold of my blog and cleaned it up :)
Erika, your post makes me proud to be your friend. Proud because you think deeply. Proud because you feel deeply. Proud because you don't back down. And proud because you are living the things you say. You do consider people with love & affection & as persons. I'm proud of you because you are not just thinking about you & Izzy but your thinking of the primary issues that need to be addressed. Your words are addressing the physical & emotional well-being of all persons (and when I say person, I mean human being). You amaze me with your words, thoughts, and heart.
I love you so much Erika. It appears to me that you are a fellow sore-picker!
I would love it if this were used to determine personhood:
"If we believe that someone’s right to life and equal treatment depends on their intellectual ability, than how does our thinking differ from those who endorse slavery or oppress women or treat a people group unjustly because they consider them inferior?"
I know, that sounds cruel, but, if you think about it, then maybe if that were used to determine personhood people would have to be a heck of a lot better humans in the world. Our governments would be different. We'd be less likely to go to war. People wouldn't be able to get away with the crap that they do. Governments either.
But that would be inhumane. It would step on constitutional rights. The patriarchy would revolt. Oh wait, the patriarchy doesn't need to revolt, they already have power.
Oops, there goes my wacky liberal feminist ideals again.
Izzy is beautiful. I'm glad she's a person, and I'm grateful you share pictures of her on the internet. I'm grateful that even with all her suffering, she has moments of pure joy. I'm grateful that she has parents who work as hard as you do. The world needs more Izzy's in it. I know, it's a lot of work, but the world needs more pure joy, the kind Izzy has (or at least seems to have, I can't know for sure since I've only met her through her pictures).
Oh, I implied the wrong thing in my post. What I meant to imply was - if personhood were determined by " those who endorse slavery or oppress women or treat a people group unjustly because they consider them inferior?" then the world would be better.
Goodness. I took the whole quote and I sound really horrible. My apologies, my huge apologies. I'm not like that at all, really.
I fully agree with you on the necessity to recognize the inherent dignity of every human being, but I am not quite sure I understand your position regarding abortion. Abortion forces one to decide over WHO is a person: if the fetus is a person, then abortion is analogous to murder and linking its legitimacy to the foetus' disability is suggesting that the disabled are somehow less human and thus are entitled to a lesser right to live. But if the foetus is NOT a person, then abortion should not be linked to any particular condition affecting the foetus. I am a strong advocate of abortion rights. Access to safe abortion promotes the equality of women as citizens. However, I do see the inconsistencies and contadictions associated with this position. Until when should the rights to equality and to self-determination of women trump the right to life of the foetus? Not even the most liberal law regulating abortion legitimizes terminating a pregnancy at a late stage in the absence of some major health risks for the woman. Does this suggest that there are different stages of personhood? Viability, given the progress of medical science in the last two decades, can no longer provide a clear-cut line. When, and in relation to what kind of development does the foetus become human?
Finally, and on a totally different subject, I am no fan of Peter Singer, and neither an animal lover, but I would not dismiss altogether his concern over our categorization of animals as lesser beings. The position animalss occupy in our societies and the treatmeent we inflict upon them seems to me to be as a huge philosophical problem, one that is far from being settled. Thanks for your reflections, it's intellectually stimulating and at the same time deeply touching to read you. And, I heart Budapest very much aswell!
Jenn - You are making me blush :)
Elizabeth - I am a major sore-picker. And you know how much I love you back.
Brook - Thank you, you are very kind. And I got what you meant, the first time.
Anonymous - The reason why you don't understand my position on abortion is because I was elusive about it. I humbly admit that I cannot come up with a position that is logically consistent without the violation of an intuition or belief that I hold. While I believe that life and personhood begins at conception I cannot honestly say that I consider the loss of a zygote equal to the loss of a fully developed human being. If I did, I would also have to believe that a woman who aborts her 9-week old fetus and the doctor who performs the abortion should face the same criminal murder charges in our justice system as the mother who premeditatedly kills her 10-year old child or her husband. But I don't. I would also have to believe that it is justifiable to use violence, like blowing up abortion clinics, in order to stop abortion, as it is justifiable when someone is stopping a murder, not to mention or mass murder or genocide. I also don't believe that the fact that more than half of pregnancies are naturally aborted during the first month is the same kind of tremendous humanitarian disaster as the Indonesian tsunami. Therefore, logically I have to admit that the fetus somehow progresses into personhood during his/her development in the womb. I also believe that abortion is ethically permissible when the life of the mother is endangered, but it is logically inconsistent and absolutely unjustifiable if the fetus has the same human rights as the mother. The same goes for incest and rape and the other caveats that pro-life advocates usually allow for: while intuitively acceptable, logically hard to get around the inconsistency. On the other hand, if fetuses are not persons than they don't have any rights and abortion is ethically justifiable even in the third term, what is more, the permissibility of infanticide can be argued too, since nothing happens at birth developmentally. However, late-term abortion and infanticide are both intuitively revolting for most people on both sides of the debate. I don't think the ethical considerations are different when the fetus/baby is disabled, I only brought it up to point out the inconsistencies in Singer's ideas. I would never opt for an abortion for convenience (I can't say I wouldn't if my life was on the line), but making early-term abortion a crime feels wrong as well. WHich again is inconsistent and probably makes me guilty of moral pluralism. This is an extremely hard topic for me. Oh and I hear you on the animal's rights problem.
I just came across your blog, gorgeous little girl you have! and yes her smile is infectious!
I think its quite bias to say that any person deserves to live or die and those people who believe its honorable to just let her die should wake up and realize that this isn't a random half stepped on worm struggling to even move, this is a human being!
It doesn't matter what test scores say or what professionals diagnose them with, how does anybody know that child is even retarded? You know how many individuals whom been labeled mentally retarded and were far from it!
They should visit individuals like www.carlysvoice.com http://idoinautismland.blogspot.com/ http://www.iaminherebook.com/ http://en.wikipedia.org/wiki/Team_Hoyt
I'm a parent of a child with autism and cerebral palsy.
Those are just some who despite their limitations are extremely intelligent inside. Albert Einstein didn't speak until he was 4, or read until he was 7, could you imagine if he needed a transplant and some doctor refused because of how "slow" he was? What would become of this world today?
Nobody has any right to say anything about anybody unless they can predict the future and read that childs mind!!!
Keep speaking your mind, I love your blog and love your posts!
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